Friday, May 6, 2016

Deegan's Fight: Apraxia? We got this!!!

Deegan wasn't much of a cooer when he was a baby and but loved to watch everything. He was very easy going and just adored his big sister. Deegan crawled and walked at normal age and said his first word (Dada) when he was 9 months. Never had any concerns at this point.
Once Deegan was 1 1/2 yrs old I started to notice that he was not putting two word phrases together or saying a lot of words. His older sister did everything early and could have a full conversation when she was his age. I know all kids are different and everyone always told me that boys are late bloomers so I tried not to compare them.
Once Deegan turned 2 I discussed my concerns with his Dr and she agreed that it didn't hurt to have him get checked out by a pathologist. I drug my feet on making an appointment because I kept telling myself that he's a boy, the 2nd child so his sister always talks for him, and that he's the baby so we were not as strict on him using his words as we were with his sister. He was a great communicator in every other way but verbal. You knew he understood what you were telling him so maybe he just needed more time right? Perhaps if I knew about Apraxia I could have identified it sooner.
I finally got Deegan in for an evaluation at 26 months where it was determined that he did have a speech delay. After going back and forth with insurance and our county program Deegan started speech therapy at 2 1/2 yrs old 2 days a week. At this point he had maybe 10 words that he would say but never together. Deegan was diagnosed with severe Childhood Apraxia of Speech at 2 yrs 10 months after being in speech therapy for 4 months.
Deegan just celebrated his 3rd birthday and has come a long way. He is working hard and has expanded his vocabulary drastically. He is now using 3 word sentences!! 

There is still a long road ahead but with the love and support he will get through this and it will only make him stronger!